Living with Marfan's
Finding out you or someone close to you has Marfan syndrome or a related disorder can be an overwhelming experience. Here you can find resources tailored to be understood by everyone so you can learn how to better cope with the condition.
Diet & Weight
A heart-healthy and joint-supportive diet is crucial for managing Marfan syndrome. Find out which foods can boost your overall health and complement your treatment plan.
Mental Health
Living with Marfan syndrome can bring emotional challenges, from anxiety to body image concerns. Discover strategies and resources to support your mental well-being and build resilience.
Pregnancy
Pregnancy with Marfan syndrome presents unique risks for both mother and child, requiring specialized care. Explore key considerations and tips for a safe pregnancy journey.
Sports
Staying active with Marfan syndrome is important, but it requires careful consideration of safe exercises to protect your heart, joints, and muscles. Learn how to tailor your physical activity to maintain fitness while minimizing health risks.
Recommended Literature
If you want to know more about Marfan syndrome and living with this disease? Below you can find some recommended literature!
When Life Comes to a Standstill: The Surgeon Who Touches the Hearts of His Patients (EN)
Ehsan Natour - Cardiothoracic surgeon MUMC+
How your Body remembers what you have forgotten yourself? (NL)
Tom de Prest - Neurotherapist
The Power Patient (NL)
Will Konings
The Power Patient (EN)
Will Konings