Conference
We are excited to announce that the upcoming conference on Marfan syndrome and associated diseases will take place in Maastricht, the Netherlands, during February 2025. This event's aim and focus is to bridge the gap between patients, researchers, and medical personnel, fostering collaboration and understanding. Please stay tuned for further updates and detailed information about the conference. We look forward to seeing you there!
Do you want to know more about Marfan’s syndrome or directly engage with professionals and researchers associated with the condition? Join us for our International Conference hosted in Maastricht, The Netherlands!
Whether you are a local, living abroad, a student, someone who has Marfan, or a researcher, everyone is welcome to join.
Our aim of this conference is to provide a platform for open dialogue where people of various backgrounds can engage directly with professionals and researchers. By bridging the gap between the clinical and research communities and those living with these conditions, we aim to foster unique insights, new perspectives, and collaboration that will ultimately benefit all parties and improve patient outcomes. We will also place particular emphasis on the cardiovascular aspects of Marfan syndrome, as these represent a critical area of concern for patients and researchers alike.
Date : February 15th, 2025
Place : StayOkay, Maastricht
Preliminary Schedule:
09:00 - 09:30: Welcome & Introduction
09:30 - 10:15: Talk by Rutger Meij about living with Marfan syndrome
10:30 - 11:15: Talk by Ehsan Natour about the perspective of a clinician
11:15 - 12:00: Talk by Koen Reesink about the current research regarding Marfan syndrome and associated disorders
12:00 - 13:00: Lunch
13:00 - 15:30: Breakout Sessions
1. Daily Activites: gain insight into how daily activities differ between patients, caregivers, researchers, and other participants.
2. Genetics: discuss the genetic aspects of Marfan syndrome and related conditions, including options such as preimplantation genetic testing (PGT).
3. Open discussion: a space for participants to discuss topics of their own choosing.
15:30 - 16:00: Closing Remarks
16:00 - 18:00: Networking, City Walk, and Drinks
Coffee, snacks, lunch, and drinks are provided throughout the day!
If you are interested in attending the conference, please sign up here. Are you seeking additional information? Please do not hesitate to contact us through our Contact Form.
We are looking forward to welcoming you to our International Conference organised by the FCBTWB team in collaboration with De Contactgroep Marfan en aanverwante aandoeningen Nederland (CMN), CellSystemics research, and Universiteitsfonds Limburg SWOL!